Cover Story

Messy stories: Disabilities and the choices parents make

In the wee hours of a late August morning, I sat exhausted but wide awake beside the bed of my two-and-a-half-year-old daughter. A pink fiberglass cast stretched from Leah’s chest down her entire left leg and partway down the right. The previous afternoon she had broken her left femur. Her thigh bone split in two and nearly end to end when she slipped on a book left lying on the floor.

After a harrowing trip to the emergency room, during which her thigh swelled to twice its size, a team of men in scrubs sedated her and then straightened and wrapped her broken leg.

Leah had broken some bones before—a couple of broken tibias (shinbones) and a broken arm. But I knew from experience that a femur fracture is a different kind of break—more painful and more disabling.