Life expectancy: On not praying for a miracle

At my 20-week ultrasound appointment, my husband and I learned that the baby that we are expecting has a fatal birth defect. Sometime very early in his development something went drastically wrong. His skull never formed—the whole top and back part of it simply did not exist. We will probably never find a medical answer to why he developed this way. Babies with acrania have a fairly good chance at living to full term and even some chance of being born alive, but they usually don’t live more than a few days after birth.